What are people with Down syndrome like?

If you’ve never met someone who has Down syndrome, you may believe that the clinical description tells the whole story.

We promise: IT DOES NOT.

If you’ve searched for Down syndrome or Trisomy 21 on the internet you may have come across the “clinical” definition of Down syndrome, complete with weird sketch drawings that make the child look very odd.

It can be alarming and surreal.

These “top of the search results” entries describe common facial features, discuss neurological diversity, highlight developmental delays and all the possible common health challenges.

It is extremely rare that a person has ALL the conditions, but common that they have some.

Reaching their full potential: People with Down syndrome are individuals and have needs that can vary widely; some have higher needs. Some have a much greater degree of independence. Each person has a unique personality and experiences a full range of emotions. Education and medical interventions continue to evolve, opening up new avenues for people with Down syndrome to achieve their full potential.

There is no way to determine how any unique individual will develop, and that is also true of individuals with Down syndrome.

Even if many challenges are present, and despite delays or health conditions, their families will tell you that their person with Down syndrome brings them immense joy.

What if the search results were powered by parents - and by people with Down syndrome themselves? These are the words that we would use:

Strong.

Smart.

Silly.

Capable.

Funny.

Charismatic.

Handsome.

Beautiful.

Charming.

Individuals.

Unique.

Talented.

Tenacious.

Fighters.

Loving.

Unpredictable.

Opinionated.

Let us know if you can think of more ways to describe the people with Down syndrome in YOUR life.

Join us! Down Syndrome Connections Las Vegas connects people in the Down syndrome community. You can sign up here.

Do you have a new prenatal or birth diagnosis (confirmed or suspected) of Down syndrome / Trisomy 21? We’re happy to listen to your questions and help you find the answers you need. Email us here or text 702-875-5007 (English) or 702-913-7715 (Spanish).